I went and saw a hematologist are Barnes yesterday and it went
quite well. She seemed amazingly smart and was very compassionate and eager to
help figure things out. She said that my veins could have clot pieces that
disturb the blood flow, we don’t know yet. She is going to review it with there
interventional radiologists because unlike the ones I have dealth with , they
have radiologists that specializes in the venous system vs the other ones do a
bit of everything.
She looked at the
pictures of how my body turns red and swollen in places, usually I can feel it
in my face. She said my left calve is bigger than the right and all this could
be from a blood disorder as well. I had blood work done and sent on my way
until she calls me after the review, with her conclusion.
I woke up this morning to a message that my “clot factors” are critically high. It should be no higher than 230 and mine is 724. The higher
the number, the thicker the blood. The lab called it in and she said it is
signs of a blood disorder because I am on high dose blood thinners and it is
still THAT high. Basically, I have a disorder but they don’t know what yet and
she will get back to me.
So, that’s that.
