test results

so results. first of all let me explain what they are testing for. There is a syndrome that is fairly common with POTS and it is called MCAS--mast cell activation syndrome. When you have an allergic reaction your body releases mast cells to help you recover but with MCAS the body releases too many mast cells in a response kind of to my body attacking itself. These Mast cells build up and can make you sick. 

for more information go here: https://www.aaaai.org/conditions-and-treatments/related-conditions/mcas

The symptoms closely follow that of POTS but I have been dealing with  a few that don't match POTS but do match MCAS. They are shown in the pictures here: one is circulation, flushing, bone pain and a thing where if I touch my skin with my finger it turns into welts:

My symptoms match the MCAS so well. When I got the news that the blood test was normal and the urine is pending. I felt and still do feel discouraged  because there are treatments for MCAS and the idea of a treatment vs. symptom management was so hopeful to me. 

Here is where I stand right now. It takes peoples years to get diagnosed with this because it is just that hard to catch. My doctor not having experience in this does concern me that he might look at the numbers and call it a day and say I don't have it. The other options are further investigations, or what I would like is a lot of people just start treatment for it assuming it is there and considering I was on a couple of medicines that were helping until I had to go off of them for accurate tests leads me to believe that just treating it like it's confirmed might be the way to go. I just don't know yet. I am very anxious and trying my best to lay it in God's hands but the raw feelings are still there.

I have spent much of my life in a state of doctor's don't know and as I find myself there again it is definitely a struggle but I know that God knows and has a plan and I just need to trust it. Please pray for me in regards to that because right now a lot of feelings are getting in the way, I am pretty defeated and just overall trying to faithfully suffer well knowing that this is for His glory not my comfort and that is more important in the big skeam of things. I just have to remember that. 

If you didn't notice music really helps me keep the right perspective and this song is no exception.

"

I'm gonna see a victory
For the battle belongs to You, Lord

Gonna worship my way through this battle
Gonna worship my way through, hey

You take what the enemy meant for evil
And You turn it for good"

God will use my battle for good even if I don't like it. God knows only how to triumph and I will triumph with Him. He will never fail me. What a day it will be when we are restored and the darkness falls, never to prevail and the Lord takes his forever victory!