I found out what my next steps are. I am left with a weird
feeling, I prayed so hard to get the ball rolling but now that it is,
everything now feels too real, I don’t know, it’s weird. I was able to finally
communicate with my hematologist and she scheduled me for a ton of blood work
and a bone marrow biopsy like my heart doctor wanted. It is scheduled for
Wednesday afternoon. After that I have to see an allergy doctor or auto immune
doctor, they weren’t sure which yet. I
spoke with someone on fb that has MCAS and she sees a doctor at SLU who actually
knows what he is doing that I will most likely see him for treatment after
these tests are completed to manage it. I just need prayers for peace, comfort, and faith to walk down another path I didn't see coming. I didn't see it coming but God did and I am called to take my faith and just keep walking and fighting so that is what I will try to do.
**If slightly graphic details bother you run away now**
I am used to needles and surgeries/procedures but I have to
admit I am so nervous about this bone marrow test on Wednesday. This test is
done where you lay on your stomach then they numb through the layers of skin
and muscle all the way down to your hip bone. They need to extract the cells that
are in the middle of the bone to test them. They make a small incision and
insert this odd contraption down until it hits the top of your hip bone and no
easy way to say it, they drill through your hip bone until they are in the
middle space that contains cells and then they suck a couple of syringes of
them out of the middle of that hip bone, remove the needle, and it’s done.
Here is the thing. You are awake. They do give morphine and Ativan
to try to help the pain that they say really helps people but I have this issue
where my body doesn’t always respond to medications so that Ativan and morphine
combo only works like half of the time with me but please pray hard with me
that this will be one of the times the medications DO WORK because this is
notorious for being a painful procedure as I am confident you can see why. This
is a non graphic visual for you that may help with comprehension.
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