Monday, June 13, 2016

Wisdom tooth removal

Praise the Lord. my claim was approved! God answers prayers! I have a few more things in this process that need prayer.
  1. The nurse is going to talk to the doctor about when he is available for it
  2. One of the requirements is that I have a pre-op visit with an anesthesia
  3. matching up when he, the anesthesia’s and an open OR is complex
  4. so regardless this will take longer than I had hoped  but pray for peace and comfort while I wait for all of the above to work
  5. Pray mostly that it will not take too long to get everything in order , I’m just ready to get it over with.
By the way I just want to thank everyone who is praying and has been here for me because prayer can move mountains and is never in vain. Your support through this messy life reminds me time and time again that I am not alone, even if it doesn’t feel like your prayers are helping, rest assured that God hears them and is faithful.

Thursday, June 9, 2016

updates and a prayer request for something this afternoon

So I figured I would update everyone about my crazy life on here more vs. facebook because I don't want to be one those annoying people who posts negative things and talks about health ALL THE TIME. For those of you who have been waiting for my test results, well, good old quest ordered a bunch of the wrong tests so I know absolutely nothing. I will never go to quest again because they always mess stuff up! So instead my nurse came out and drew the blood through the port yesterday and I am waiting for those results to pop up online and I will go from there.


Also I'm excited and a tad nervous because my doctor put me on Adderall  to see if it helps my brain fog because I'm loosing my mind like a dementia patient but I'm nervous about how it is going to make me feel. If you take it I would love your input.


Lastly my prayer request. Ahem I'm slightly ashamed but I need the prayers so here is the thing. I have a SEVERE phobia of the dentist cause of some bad experiences and I go in for a consult with an oral surgeon today and I have the following prayer requests.
  1. pray for my severe anxiety that shoots my heart rate up to bad bad levels and drops BP, making me more likely to pass out.
  2. because I am nervous it is already flaring up my involuntary movements, shaking and adrenaline dumping
  3. This disease heightens everything so every sound from people talking and the drills won't be good, The light that they shine right into your eyeballs is the worst.
  4. As you can probably geuss it's a whole plethora of all of my triggers at one time which makes me really sick
Lastly, with all this I cannot get any dental work done unless I am sedated AND everyone so far is too scared to give me anesthesia because of my POTS. It's a long, terrifying battle for me BUT I spoke with an office today and they have me coming in for a consult this morning at 10:15 and I need all the prayers I can get since I am already freaking out. Thank you all. You are all such a an encouragement to me.

Wednesday, June 1, 2016

no options...

I was told..again.. today that I am out of treatment options and we have to pick and choose what symptoms to treat without doing damage. I knew that already. It just doesn't get any easier to hear it and accept it without crushing my soul. I think with each doctor I see I go into it with a sliver of hope that they will have my cure despite the fact  that I know it probably won't happen. To date I have seen 3 neurologists, 2 cardiologists, 7 electrophysiologists, 2 primary care doctors, 2 GI doctors, 1 allergist, and 1 oncologist and I got the same answer of "I can't help you" from all of them. I'm at the frozen spot and I think this is where I have to learn to trust that God will do what He said and give me a hope and a future, I'm just not sure what that looks like yet.


I don't WANT to believe that exactly this could be what it looks like. It's a scary place but something I have to confront and learn to cope with whether I want to or not. I have questioned God on what we are doing here through all of this and now I wait on God to take this life that He created and do according to His plan. Perfect plan. It's a plan I really don't understand and it's a hard one but maybe one of these days I will learn to let go and let God, who allowed this, to be the one to give me what I need and drag me through it. You allowed it now it's yours. I can't do it so you have to.