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Well, to begin all this out let me just request your prayers as decisions are made and for divine intervention in it all.

My previous electrophysiologist moved to fort Leonard wood and I was slightly upset about it and how it is going to change things but I absolutely admire her decision to switch to caring for those that risk there very own lives to save the community and world so I can't be too upset about it but it did bring change.

On Tuesday I went and saw a new one and he was VERY honest which I appreciate but at the same time you don't want to actually hear it. He reviewed my records and basically said there is nothing that he or any doctor he could transfer me to can help. He said Dr.Q has done so much for me, more than he would have even done.

Then he said this is a complicated situation and diagnosis and there is no standard treatment. He said there is no cure, it is a lifelong thing and because you are so young and your quality of life is so poor the only thing I can offer you that might help is to go a special autonomic disorder clinic. Problem: he doesn't know how "getting into one" is achieved so I have to consult my primary care to get that ball rolling.

He would prefer for me to go to The University of Toledo Health and vascular center which has the leading specialist in this. I also did research on the like 4 mayo clinics in Arizona, Florida, or Minnesota. The issue right now after talking to a couple places that I am looking at YEARS to get in. Yes, years for my only hope outside of Jesus.

So thankful for the hope I have in Jesus I do not understand how people make it through this without it. Basically, they go from fad to fad hoping that maybe "this one will help me" and really the focus needs to be switched from the fads to the ONLY One that can help and heal you. Fads might work for a tad but in no time you will be searching for a new one if it is not from the Lord. Our peace should come from this:

Matthew 11:28-29
“Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls."

That does not say turn to fads. yes, I realize God puts things and people there to help us. I am not saying that some of these fads could really be given to you by God. He is big and can do as He pleases so it is not out of the question altogether but look at your motives because I have seen So many people who try out all this stuff but they are replacing God and not "consulting" and using God to guide you on what HE wants you to try not what YOU want to try in desperation. God can give you something that could heal you but you cannot rely on that you must rely on HIM.

I am preaching to myself hard core right now as I struggle with new information and what will my life be like if no cure is available and my desire to look for hope in all the wrong places. We all struggle with this in one way or another and I am putting this out there mostly, for myself because I have to do some serious self preaching right now. Lord Jesus, come quickly.

In conclusion,
please pray for me, my family and my doctors as we make decisions on what to do going forward. It is complicated and we need God's direction so much right now.